Thursday, June 25, 2009

Cycle 1 - week 3 summary

Will's counts remaines strong this week, the 'sore' in his mouth (probably just a canker) has resolved and he his sleep seemed to return to it's previous schedule. The only impact thus far seems to still be related to the once a week steroid dose Will receives. THe night of, and the night after, his sleep is disturbed and his appetite is voracious. His mood is volatile, he can become unusually angryr, he is saying things and acting out in a manner he has previously never exhibitied (being defiant, kicking, spitting, hitting) and throwing tantrums over denied request for absurd amounts of food and drink. As we enter the 4th week of the cycle that did not require a dose of steroids or TPI we hope he returns more to his usual kind temperment. While always very active and fidgety he was never defiant, angry, rude, or defiant. Otherwise we see no other side effects from his therapy.

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